SIMPLE PLEASURES

have a beautiful weekend

and thanks for sticking with me and tuning in during Ryan Dunne week(s) 
my heart is full of the kindness of 104,000 people




image found: here

100,000!

LAST NIGHT. WE DID IT! THANK YOU TO ALL WHO SIGNED AND SHARED. 
WHAT A MONUMENTAL NUMBER! 


Keep an eye out for more media coverage, more news, more progress. We have a long way to go to get the dosing started but at least we now have hope that the voices of all these brave parents and their children will be heard. 


This is a very similar situation to the Dallas Buyers Club story, only Ryan's medicine isn't available in any other country. It IS available here yet the FDA won't grant accelerated approval. The FDA has data that shows its safe. The FDA has had this data from clinical trials for over 18 months and done nothing.  Its time.   

THE RACE TO YES CONTINUES... 

GET HAPPY

We are in the home stretch.  This is the last 5 days to sign the petition urging the FDA to use their power of accelerated approval to save my nephew Ryan Dunne and countless other kids from the fatal disease Duchenne Muscular Dystrophy.

The Cherry Hills Village and Denver community support has been overwhelmingly beautiful. Celebrities, sports stars, and total strangers have taken it to heart and are helping get the word out. Please support these kids who have no chance to beat this disease otherwise.  This is the closest shot they have at survival and it is out of reach. Science agrees.

Watch this and get HAPPY. It will make you smile, and then I hope act. 



WE NEED YOU IN THE HOME STRETCH

The loving and highly enthusiastic friends of my sweet nephew Ryan Dunne did this video (to Pharrell's 'Happy') the other day. So touching! 



If you haven't already please go to The Race to Yes or Help Ryan Dunne or directly to the petition here

and sign
and share

We have until March 29th to make 100,000 signatures happen. And we need your help. 

If you would like to read  more about Ryan and why this is so important that the FDA hears our voices you can find information Duchenne Muscular Dystrophy on The Race to Yes website  and  www.helpryandunne.com

IN THE NEWS

Momentum is gaining but we still have a long way to go to get to 100,000 signatures. My sister was on CBS news lastnight in Denver. Please watch and if you haven't already, sign the official White House Petition to help him get the drug he so desperately needs.

He is awfully cute. The little guy just wants to dance... but he can't. This is a huge change since we saw him in December. That is 3 months ago. I was shocked at the decline when I watched this.  For more on Ryan go to www.helpryandunne.com.  For more on Duchenne Muscular Dystrophy visit The Race to Yes


KIDS HELPING KIDS

Yesterday at Ryan's school, Cherry Hills Elementary, a group of amazing parents and kids put on a dance party to Pharrell's 'Happy' to support Ryan.  How touching and wonderful this is! If you haven't already, please sign the official White House petition to help Ryan get a life saving drug.


RYAN NEEDS A FIGHTING CHANCE

Back to regularly scheduled programming next week but for this week its all about signing the White House petition for my sweet nephew.


We have until March 29th to get to 100,000 signatures. It takes 2 minutes to sign.

To learn more about Ryan and why this is so critical you can visit helpryandunne

To sign the White House Petition for accelerated approval of a life saving drug for my nephew and other kids with Duchenne Muscular Dystrophy,  go directly to it: here

If you have already signed I thank you from the bottom of my heart. If you could share this on Facebook and twitter it would help a great deal. 





A WEEK OF #RYANDUNNE

This week I am posting the single most IMPORTANT thing on my mind and asking you to do something. 

Each day this week is critical to gaining the 100,000 signatures needed by March 29th to get the White House to question the FDA as to why they are sitting on approval of a drug that will save my nephew's life. A drug that science says works.


Momentum is gaining, especially on twitter. Check out @theracetoyes to get on board and retweet. 

Denver Bronco players and PGA golfers are signing, tweeting and retweeting the petition. People have big hearts and these kids need that energy right now.

Please join in that momentum by signing this petition.  If you would like to find out more about why this is so critical you can visit The Race to Yes website.

Here is Ryan's story and the beauty of this website is that it was created by three high school girls. It is so wonderful to see kids take action in this caring way. 

The outpouring of love and support for my sister's family is amazing.  Kids 13yrs and older can sign this petition so if you feel comfortable, talk to them about 'kids helping kids'. 

#ryandunne #fda #duchenne #theracetoyes



ALL WHITE

I am slightly obsessed with white as you all know. It must be spring but I have an unusually high desire to paint everything in my life right now.  I am currently in the process of transitioning the exterior of our house from a gold tone to a more Greige color.  A subtle shift that will make a massive change I think.  

And as far as the interior goes, it is currently creamy cream.  I want to take it to white white.  Also on the horizon is a breakfast room addition on the back of our kitchen. We are getting very close to permit stage so I can't wait to start sharing progress with you.  

As I was looking for images for the breakfast room addition I stumbled on this one:

found: here

Which sent me into an excited tizzy. It is what I hope our kitchen / breakfast room addition feels like in the end. White paint, change out our butcher block island for white add windows and doors everywhere, a ceiling treatment like this one. This image is exactly what I've been waiting to see. I've seen it in my head, now I can show the builder pretty much exactly my dream result. 

Here is more from this lovely home by LDa Architecture and Interiors






DETAILS

One of my favorite things to do is go to the store (Canvas Interiors) and walk around with my camera for a while. I look at things differently through the lens. It helps me edit and concept, dream and think. From time to time Mr. K asks me to step back a few paces to get a few wider shots but I have to say that while I love Mr. K very much, I prefer the details.


images ©Canvasinteriors

THE WHITE T

Still in closet cleaning mode over here... on to the white t-shirts and tank tops from last summer. The uniform needs a refresher. I can usually get two spring/summers out of my white T's with a little extra care and feeding. I added one or two last summer but this year they all have to go to the donate pile and I need to start fresh.  




Dress them up, add some pattern, throw on a blazer or simply a fresh face and headband. The plain white T will never let you down. 




SIMPLE PLEASURES

The feeling you get by helping a cause is a simple pleasure. 

If you haven't already, please support my sister in her fight to have the FDA approve a life-saving drug for her son
who has #Duchenne Muscular Dystrophy.  
You can do so by signing an official White House Petition.

Please, SIGN HERE

with gratitude,

xoox
catherine


for more information: the Race To Yes



BEHIND THE SCENES

While writing about summer dresses and interesting interiors there is something going on behind the scenes. My nephew Ryan has Duchenne Muscular Dystrophy and my sister and brother-in-law are engaged in a huge nationwide effort called #TheRacetoYes, to urge the FDA to approve a drug that will save his life. I am trying to help in any way I can. 

Today I share a glimpse behind the scenes in the hope that you will spread the word and sign an official White House petition to capture the President's attention and urge the FDA to grant accelerated approval for a drug that will save lives. The drug has been studied, science shows it works. It is that simple. 

Meet Ryan. He is a sweet, creative funny kid who is in decline.
The facts below apply to him which is heartbreaking. 


There is a drug that has proven itself in clinical trials. Ryan needs that drug. It is achingly obvious. Science agrees.







An inspiring group of families working together to save the lives of their children and future generations of children with Duchenne MD.  The Race to Yes website is a great way to learn more.  These families are working so hard to be heard while they are watching their children deteriorate before their eyes.  

As of this writing, they still need 93,564 signatures by March 27th. 

Our voices are needed to help these children. 
The way we can do that is by signing the petition

Thank you for stopping by the blog today and thank you for allowing me to share this story with you.

more links and information:

the Race to Yes Facebook page - like for updates



the Race to Yes press release - a good one stop summary









5 THINGS

With warmer weather upon us in FL (sorry Northern friends) and with summer plans signed and sealed (happy place here we come) I am in full closet clean out mode. I tend to keep things in my closet a little bit too long and this week I'm really cleaning out the cobwebs from last summer. Donating all sorts of things to a good cause and it feels good. 

While letting go of styles-gone-by and impulse buys I am left with the the constants in my closet which feels awesome. Its amazing how keeping it simple is actually liberating. These constants are always in heavy rotation for me. For those who see me on a regular basis you will nod with familiarity when you see these 5 things. No surprises here. I am rather predictable. Which makes me happy and comfy. 



Mix any of these '5 things' into your look this summer for a go-to style that is so very easy.
 (clockwise from top left)

5. sandal



PERFECTION

There is not much more to say other than 'perfection'.  
This dress is just heaven on earth. Lupita's speech was heartfelt and her charm undeniable.   
#NairobiBlue is the new black.




I have had an itch for a pale blue something for summer and I am waiting with baited breath until someone makes a similar dress at a non-Oscar price point.

In the meantime, here are a few casual floaty summery things to get your imagination going:



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